https://nova.newcastle.edu.au/vital/access/ /manager/Index ${session.getAttribute("locale")} 5 Perceptions of fluid restriction self-care in heart failure https://nova.newcastle.edu.au/vital/access/ /manager/Repository/uon:37519 Wed 27 Jan 2021 16:48:20 AEDT ]]> Early access to a cardio-oncology clinic in an Australian context: a qualitative exploration of patient experiences https://nova.newcastle.edu.au/vital/access/ /manager/Repository/uon:53423 Wed 17 Apr 2024 14:39:15 AEST ]]> Instruments to measure the inpatient hospital experience: a literature review https://nova.newcastle.edu.au/vital/access/ /manager/Repository/uon:27199 Wed 11 Apr 2018 17:09:32 AEST ]]> The lived experience of lupus flares: features, triggers, and management in an Australian female cohort https://nova.newcastle.edu.au/vital/access/ /manager/Repository/uon:19222 Wed 11 Apr 2018 16:57:54 AEST ]]> What really matters?: a multi-view perspective of one patient's hospital experience https://nova.newcastle.edu.au/vital/access/ /manager/Repository/uon:27229 Wed 11 Apr 2018 15:03:15 AEST ]]> Comparison of patient perceived primary care quality in public clinics, public hospitals and private clinics in rural China https://nova.newcastle.edu.au/vital/access/ /manager/Repository/uon:31127 Wed 11 Apr 2018 11:44:58 AEST ]]> Representing the patient experience of heart failure through empathy, journey and stakeholder mapping https://nova.newcastle.edu.au/vital/access/ /manager/Repository/uon:48583 Tue 21 Mar 2023 18:09:52 AEDT ]]> The patients' experience of severe asthma add- on pharmacotherapies: A qualitative descriptive study https://nova.newcastle.edu.au/vital/access/ /manager/Repository/uon:43470 4 months (75% mepolizumab; 25% omalizumab, and 25% macrolide) were recruited. Qualitative semi structured interviews were conducted, with interviews thematically analysed. Results: Participants’ mean (SD) age was 59.5 (15.3) years, and 50% were male. Participants reported 4.5 (2.3) exacerbations in the past year. Asthma Control Questionnaire score was 2.0 (1.4). The monoclonal add-on therapies had been prescribed for a median (IQR) of 12.5 (7.0, 24.0) months. Experience was captured in four emergent themes: “Life is just easier” provided an overall message that the add-on therapy made the participants’ life easier in terms of increasing participation, levelling out symptoms, providing more energy and reducing healthcare use. “Prednisone: A necessary evil” was discussed, particularly in terms of dose and dependence and damaging side effects. The theme “worry and hope for the future” referenced treatment non-response or cessation of effect which was discussed by some participants. Finally, “holistic care” was centred on the sentiment that the participant’s asthma management and overall health were not related to one aspect or medication alone. Conclusion: Patients with severe asthma experience vast improvements in quality-of-life and life participation with add-on therapies, but there remains a significant burden related to oral corticosteroids and incomplete treatment responses. Addressing this residual burden is an important area for future research.]]> Tue 20 Sep 2022 10:13:32 AEST ]]> The healthcare experiences of women with cardiac disease in pregnancy and postpartum: A qualitative study https://nova.newcastle.edu.au/vital/access/ /manager/Repository/uon:52219 Thu 05 Oct 2023 10:22:51 AEDT ]]> Exploring staff experience of an "enriched environment" within stroke rehabilitation: a qualitative sub-study https://nova.newcastle.edu.au/vital/access/ /manager/Repository/uon:16870 Sat 24 Mar 2018 07:54:47 AEDT ]]> The cognitive side effects of modern ECT: patient experience or objective measurement? https://nova.newcastle.edu.au/vital/access/ /manager/Repository/uon:5318 Sat 24 Mar 2018 07:45:58 AEDT ]]> Inpatient views and experiences before and after implementing a totally smoke-free policy in the acute psychiatry hospital setting https://nova.newcastle.edu.au/vital/access/ /manager/Repository/uon:26614 Sat 24 Mar 2018 07:34:00 AEDT ]]> A systematic review and meta-synthesis of the qualitative literature exploring the experiences and quality of life of survivors of a cardiac arrest https://nova.newcastle.edu.au/vital/access/ /manager/Repository/uon:32606 Mon 25 Jun 2018 12:15:14 AEST ]]> Patients' experiences of using a consumer mHealth app for self-management of heart failure: mixed-methods study https://nova.newcastle.edu.au/vital/access/ /manager/Repository/uon:48510 Care4myHeart. Objective: This research aimed to determine patient experiences of using the app to self-manage heart failure. Methods: Patients with heart failure used the app for 14 days on their own smart device in a home setting, following which a mixed-methods evaluation was performed. Eight patients were recruited, of whom six completed the Mobile Application Rating Scale and attended an interview. Results: The overall app quality score was “acceptable” with 3.53 of 5 points, with the aesthetics (3.83/5) and information (3.78/5) subscales scoring the highest. The lowest mean score was in the app-specific subscale representing the perceived impact on health behavior change (2.53/5). Frequently used features were weight and fluid restriction tracking, with graphical representation of data particularly beneficial for improved self-awareness and ongoing learning. The use of technology for self-management will fundamentally differ from current practices and require a change in daily routines. However, app use was correlated with potential utility for daily management of illness with benefits of accurate recording and review of personal health data and as a communication tool for doctors to assist with care planning, as all medical information is available in one place. Technical considerations included participants’ attitudes toward technology, functionality and data entry issues, and relatively minor suggested changes. Conclusions: The findings from this usability study suggest that a significant barrier to adoption is the lack of integration of technology into everyday life in the context of already established disease self-management routines. Future studies should explore the barriers to adoption and sustainability of consumer mobile health interventions for chronic conditions, particularly whether introducing such apps is more beneficial at the commencement of a self-management regimen.]]> Mon 20 Mar 2023 16:25:46 AEDT ]]> Health care professionals talking: are services for young adults with type 1 diabetes fit for purpose? https://nova.newcastle.edu.au/vital/access/ /manager/Repository/uon:39985 Fri 22 Jul 2022 13:00:18 AEST ]]> Adult patient communication experiences with nurses in cancer care settings: a qualitative study https://nova.newcastle.edu.au/vital/access/ /manager/Repository/uon:43396 Fri 16 Sep 2022 09:58:32 AEST ]]> Patients' experiences of using a mobile application-based rehabilitation programme after total hip or knee arthroplasty: a qualitative descriptive study https://nova.newcastle.edu.au/vital/access/ /manager/Repository/uon:54859 Fri 15 Mar 2024 17:15:50 AEDT ]]> Psychosocial well-being of brain cancer patients and support persons: A mapping review of study types over time https://nova.newcastle.edu.au/vital/access/ /manager/Repository/uon:49364 Fri 12 May 2023 12:42:06 AEST ]]>